11 days after Mercy’s birth, and 6 days after her jaw distraction, I finally got to wrap my arms around my little girl…
and cry tears of joy.
There are no words for how amazing it felt to finally hold my baby girl.
To give you a little bit of an idea of what exactly is happening with Mercy’s jaw, here is a photo of her “pins.”
There are 2 incisions on either side of her jaw where the hardware is attached. A rod runs along her jaw with a pin discreetly coming out from behind each ear. These pins are turned with a type of screwdriver. In the beginning, the pins were turned 3 revolutions, 2 times a day. Now, they are turned 2 revolutions, 2 times per day. This turning slowly pushes her jaw out. This surgery literally saved her life! Without it, her tongue would always be in her airway. As you can see, the difference in just 6 days is huge!
Before we go home, they will hide the pins under the skin, and when Mercy is 3 months old, we will go back to have the hardware removed. This gives the bone time to grow.
Mercy has been making huge strides since I last updated. Every day seems to have new adventures – from feeding with a new bottle to getting off all extra oxygen, to only having a NG tube and leads left on her. We just keep praying our way through it all.
To learn more about the special Dr. Brown’s bottles Mercy is using click here.
You can also watch my video on How to Use a Dr. Brown’s Specialty Bottle:
Her pin turns are expected to be completed this weekend. She will have a distended jaw when it is all said and done, but will slowly grow into it. Our biggest obstacle after this will be getting Mercy to take her full feedings through a bottle every single time.
We are so excited to see all the progress she’s making, and we PRAISE GOD for modern medicine, for friends and family so willing to pitch in and help out in so many ways, and for the supernatural strength and stamina our entire family is finding through all of this! Thank you so much for your prayers!
If you are looking for a fun way to celebrate Advent, check out Truth in the Tinsel. This is a hands-on crafty Advent celebration for younger children.
Or take a look at the newest addition to OUR Christmas season – Melk the Christmas Monkey! (an alternative to Elf on a Shelf – which has always sort of creeped me out.)
Buy the book HERE.
And, please check out one of my absolute favorite Advent Nature Studies –
This Nature Study Through the Holidays is excellent, and a super neat way to celebrate the holiday season AND get some schooling in!